Poopie goes
hiking! Added
November 11, 1999
Here
are some great black and white photographs of
Mark and Steph, taken by Kerrie Hawkins during a day hike of the Blue Hills
in Canton, from October.
Photos of
Mark's October stay in Swansea! Added November 7, 1999
Mark spent four days visiting Pa and Grandma White in Swansea while Paul and Steph went
to Maryland for Jonathan's wedding. Here are some pictures of Mark in Swansea!
Poopie Update November 2, 1999
Sorry for taking so long to update the site again! Mark has been doing great: He's responding to and imitating sounds
again! Mark has an hour of therapy three days a week, one in-home and the other two at the Clarke School in Canton (Mom and Dad switch off taking him). He's
also in Mrs. Loughran's daycare three days a week, which he loves. Poopie's new thing is "UG!", which is an all purpose word that is mostly used
to draw attention to the fact that he's upset. It's usually accompanied by a smack (from him, not us). The little monkey can climb on anything, fences, chairs,
couches, whatever: If it's in his way, he'll climb over it. And if you don't like him doing that, well UG to you!
Meanwhile, Mom is working three days a week in Boston at Custom Communications Partners, while Dad is continuing his job writing from home (yeah, Paul has a
job. Still). Speaking
of which, Paul and Steph hope to close on a new house in Dedham this week! We hope to move in by mid-December. Needless to say, October was a busy month!
Also, last week Mark's uncle and new aunt, Jonathan and Jamie, got married in Maryland! Congratulations, guys! And speaking of congratulations, Nicole
and Kip recently gave birth to their first child, Jake! Way to go, guys, we're sorry we couldn't be there to help out!
We'll get some pictures of Mark, the wedding, and the new house up as soon as we can, hopefully this coming weekend. Seriously.
"How's Mark?"
September 28, 1999
Since his surgery, the one question we get all the time is "How's Mark?" Well, Mark's great: His implant gets turned
on this week and his development was just evaluated as being exceptional for his age. According to the report, Mark is an excellent imitator, knows how to get
what he wants, understands "no," is exceptionally alert and intelligent, and loves to eat. In other words, this told us absolutely nothing! But
Mark's a cutie, loves to watch the Teletubbies and is having a great time here in Dedham.
Here are some pictures of Mark playing in the yard that Grandpa Thurrott took last Saturday, the 25th.
"Massive Head-wound
Harry" in action!
September 8, 1999
Here are some
pictures of Mark, two days after he got out of the hospital, playing in the
house and yard, and picking tomatoes out of Grandpa Thurrott's garden. Mark's
recovery from the surgery has been phenomenal and he was back to his old self
almost immediately!
And here are some other pictures from mid-August,
while we were still waiting for Mark to get his surgery. Mark's out in the
Thurrott's backyard, playing and picking tomatoes like a good little
Massachusettian.
Adventures in Daycare
September 8, 1999
One of the things we were positive we'd never
find a replacement for when we moved from Phoenix was Mark's daycare, which was
one of those rare special places. We also knew that daycare in Boston was going
to be about five times as expensive as it was in Phoenix. Well, imagine our
surprise when we found a place for Mark that is literally 6-7 doors down from
Paul's parents' house in Dedham. And the woman that runs the daycare knows Paul
and Paul's family from way back and was happy to let Mark join up. And this
isn't some corporate chain: it's a small in-home deal with only ten children. In
other words, it's perfect. And we were wrong, thank God.
Here are some pictures from Mark's last day
at daycare in Phoenix.
And here is a picture from Mark's first day
at daycare in Dedham.
Surgery a success!
September 3,
1999
After
months of waiting, Mark finally had his cochlear implant operation yesterday
afternoon and we're happy to report that everything went great and that the
surgery was a success. Mark's surgeon said that the implant was fully inserted,
which will give the best results, and that its electrodes are positioned
correctly. Mark will have to deal with a funny haircut for a while and a nice
scar that will eventually be covered by his hair, but that's a small price to
pay.
We spent the night at Mass Eye and Ear with Mark, which went surprisingly well
given our previous experience with Phoenix Children's Hospital, which was an
insane asylum by comparison. Mark slept through the night and woke up hungry as
ever this morning, which was a good sign. After a few check-ups and an x-ray to
ensure that everything was in order, we all came home late this afternoon.
After a wait of four to six weeks so the incision can heal, Mark's implant will
be turned on and calibrated over a period of time. This will enable Mark to
learn to hear again, and then he can move on to speech therapy.
Surgery tomorrow
September 1, 1999
Mark's
twice delayed surgery is now schedule for Thursday, September 2nd. Everything's
looking good and we'll let you know how it went as soon as we get back from the
hospital.
Back in Boston
August
27, 1999
Well,
we 're
back. Here's an email message Paul sent out earlier this week to update
friends and family about the move:
Mark's surgery has been put off once again because of his lingering cold.
Current ETA is next Thursday. Mark was nice enough to give me a cold the night
before the movers came; this was the night that we absolutely had to get the
house packed. The stupid thing is: I still have the cold too. And my ears all
plugged up during the flight and my left ear is still plugged up. Ten days.
Geesh.
Anyway... the moving truck delivered our stuff last Saturday and we got it all
into storage. But... I was unable to get a truck to get any of it here to my
parents house until today.
A couple of observations about Boston: I know I've only been gone
six years, but it feels like a different place to me. It's so damn GREEN. There
are trees everywhere: Several years ago, my sisters came out from Arizona for a
week and commented that sleeping in our house was like camping in the woods.
That's how I feel now, it's weird. I just can't get over the trees. But it's
certainly a lot cooler here than Phoenix in the summer. I can't say I mind that.
Everyone out
here thinks they're a farmer: Practically everyone grows tomatoes in their yard
for some reason. And it seems like half the people out here are antique dealers:
Everyone is selling something, a single 1880's chair, an old lamp, whatever.
It's kind of funny.
But the
people have been nicer than I remember them. And everywhere I go, it's like a
family reunion. Everyone remembers us in this little town, I even ran into
someone I knew in the waiting room at the doctor's last week. It's kind of
hilarious.
A woman just
a few doors down from my parents is running a daycare out of her house (needless
to say, she knew me, my parents, my sister and my brother, the whole thing), so
we got Mark into there three days a week. We were going to start after the
surgery, but we might bump it up because of the delays. Steph has been trying to
squeeze some freelance work in-between watching Mark. Not so easy because he's a
handful.
...
We're basically set up here in Dedham. We've got a nice office to work out
of and our own rooms in the back of the house. Our car arrived this week, and
that's pretty much the last thing we needed to get. Mark plays with the dogs,
both here and at Steph's parent's house, and helps Grandpa Thurrott pick
tomatoes in the back yard.
We hope to have some photos to share soon!
Final Update before the move
August 7, 1999
Before we head off to Boston, we thought we'd post some of recent photos:
See you in Beantown!
We're moving to BACK TO BOSTON!
July 23, 1999
It's official: We're moving back to Boston to make sure that Mark can get the care he needs and begin hearing again as quickly as possible. Mark
is tentatively scheduled for surgery at Mass Eye & Ear on August 17th. Our house went on the market this week and was sold, literally, within 24 hours(!).
When Stephanie and Mark get back from their preliminary Boston trip this Sunday, we'll begin making our plans for the move.
Mark Update!
July 21, 1999
Sorry for the long delays since the last update: Admittedly, we've had a lot going on. Mark's situation, since his illness in April, is that he
has lost most of his hearing and needs to get a cochlear implant. Luckily, he's an excellent candidate for this, and it looks like he'll be getting the
operation soon, in Boston. And otherwise, he's in great health, climbing on everything and running around like a little bandit.
Two weeks ago, Mark had a CT scan to determine whether he's had any bone growth in his cochlea. The good news is, he doesn't. But Mark and Stephanie headed to
Boston this week to have him checked out for his eventual operation. We'll post info here as it comes in.
In the meantime, we do have a few pictures to post. Grandpa and Gram Thurrott came out in May to visit, and
here are some pictures from their trip. Aunt Cathy came out with Mark's first new cousin Andrea in June, but we don't have any pictures yet unfortunately. We'll try and get some up soon.
Going forward, we've got a lot to do, and its suddenly happening quickly. We'll try and keep the site updated.
What happened to
Mark?
Updated April 26
It's been a while since the last update, but we've had
a tough time lately: On April 18th, Mark was rushed to Phoenix Children's
Hospital with a severe infection of the fluid around his brain. Tests
revealed it to be "strep-neumo" meningitis (Streptococcus
pneumoniae), a now-rare form of bacterial
meningitis. Mark seems to be recovering at an amazing rate, thank God, with only some
hearing loss: A small price to pay when you consider that he could easily have died from
this
illness. Here's some info from the days before,
during, and after this awful tragedy:
- Here
are some older pictures that we
recently got back from late 1998. Included are Christmas Eve in
Phoenix before leaving for Boston, Mark taking a bath, and a few
others.
- Mark
turned one on April 7th and his daycare held a birthday
party for him. Sadly, Mark was sick with a cold, a preview of
the bigger illness to come.
- We
had our own birthday party for
Mark on April 9th, with Aunt Lori, and Kip and Nicole Dean.
- On
April 18th, Mark was rushed to the hospital. For the rest of the
week, Stephanie and Paul switched off nights with Mark in Phoenix Childrens Hospital
while the other went home to try and get some real sleep. Days
were spent alternating time with Mark with work and home, though
at least one of us was always at the hospital. Here are some pictures
we took after the worst was over, a couple from each day,
Wednesday to Friday. Looking at these photos, it's hard to even
comprehend how serious things were.
- We'll
have more soon, including some notes from Paul and Steph, and a
bunch of the wonderful email we received from around the
world.
So
now what? Mark's got a couple of appointments this week with his
pediatrician and an ear/nose/throat specialist. And we'll be giving
him twice daily injections of antibiotics through his PICC IV until
May 3rd, to fully battle the bacteria that invaded his body.
Hopefully, his hearing loss will be temporary and/or partial, but the
overall outlook is good. And really, when it comes down to it: He's alive. And that's all that matters.
Little walkin' dude in action!
Added March 18th
These are some video stills from the first week of February (sorry it took so long to
upload), showing Mark walking. When this video was taken, Mark was just learning to walk
unassisted, and he was a little wobbly. Today, Mark cruises around the house with ease and
doesn't crawl anymore. He gets into everything and hides stuff in every corner of the house.
Mark Walks!
Added February 6th
Mark's been walking around for the past month or so while holding one hand on a
couch or chair, and he also pushes his little riding train around like a walker, but
this week he's really started to walk alot on his own by cruising from one stationary
object to another. After a few months of practicing standing up, he's now practicing
walking every day, and he can usually go a few feet at a time now.
Webcam-O-Rama: Mark at 10 months
Added February 6th
Here are some more shots from the Webcam, taken
while Mark was using the computer the day before his 10 month birthday.
Webcam-A-Go-Go
Added January 30th
Here are a couple of Webcam video captures of Mark at the computer this past week.
Christmas Homecoming
Added January 30th
Mark came, he saw, and he conquered Boston on his first trip. He was
great on all of the flights and we were even complimented several times by
people who got a little nervous when they saw a baby nearby. Here are some
photos from the trip:
White's Open House - December 26, 1998
Thurrott's Open House, Part One and Part Two - December 27, 1998
Christmas Photos
Added January 30th
Here are Mark's "official" Christmas 1998 Photos!
Nine month checkup: Perfect!
Added January 30th
Mark went in for his nine month checkup last Thursday and came away, once again, with
flying colors. Mark is 30 inches tall now and weighs 20 pounds, 11 ounces. And yes, once again,
he was described as "perfect." Mark is now walking while holding onto the couch and chairs, etc.,
and he pushes around a train that he likes to ride on. He's super mobile, and gets into
everything as you might expect. He mimicks everything we do, including "zerberts"; he sticks
out his tongue at us and loves to play jokes on us. He also chases the cats around the house, though they're not
as thrilled about it for some reason.
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